HI!
Below is an email from Neurofibromatosis Inc. Northeast about an NF2 patient who was recently granted a wish from the "Make a Wish" foundation. ESPN will air a program where NF2 child Stephan meets with his hero David Ortiz.
I don't have cable tv but would LOVE to see the program. Please watch it and tell me about it! :o)
P.S.- to learn more about Neurofibromatosis, please visit the website (lighthouse icon in the post title) for the NF Inc. Northeast chapter.
Here are the highlights of their meeting:
Stephan Zepeda-LeColst – David Ortiz's Fenway Park Guest
Age – 12; Hometown – Middleton, Mass.; Condition – neurofibromatosis, type 2
Wish: To meet David Ortiz
Stephan, who had his own locker in the Red Sox clubhouse, met Ortiz for a personal tour of Fenway’s ‘Green Monster’
Age – 12; Hometown – Middleton, Mass.; Condition – neurofibromatosis, type 2
Wish: To meet David Ortiz
Stephan, who had his own locker in the Red Sox clubhouse, met Ortiz for a personal tour of Fenway’s ‘Green Monster’
Email from NF INC Northeast:
Hello everyone,
One of our young NF2 patients Stephan Zepeda LeColst (age 11), was recently a Make a Wish child. His wish was to visit with David Ortiz who has been his hero since he was 3 years old because David is big and strong.
They met last week and ESPN will air a program about their visit on Tuesday 6/26. ESPN Sportscenter airs from 6-7pm ET each night, and then again from 11pm-12am and 1am-2am. It then reruns again six times the next morning. ESPN has also written an article about them which I have attached. (sorry, I could not get the attachment and include it here)
A humorous story about Stephan - the day before they were scheduled to meet, David Ortiz called him at his home in Middleton to introduce himself. Stephan (who has hearing loss) thought it was his neighbor playing a joke on him and hung up the phone. Big Papi thought it was very funny, and called back! As you will read in the article, they had a great day.
Karen Peluso, Executive DirectorNeurofibromatosis, Inc., Northeast*9 Bedford StreetBurlington, MA 01803781-272-9936
fax 781-272-9937cell 617-529-9562http://www.nfincne.org/* A Member of the National NF Coalition
One of our young NF2 patients Stephan Zepeda LeColst (age 11), was recently a Make a Wish child. His wish was to visit with David Ortiz who has been his hero since he was 3 years old because David is big and strong.
They met last week and ESPN will air a program about their visit on Tuesday 6/26. ESPN Sportscenter airs from 6-7pm ET each night, and then again from 11pm-12am and 1am-2am. It then reruns again six times the next morning. ESPN has also written an article about them which I have attached. (sorry, I could not get the attachment and include it here)
A humorous story about Stephan - the day before they were scheduled to meet, David Ortiz called him at his home in Middleton to introduce himself. Stephan (who has hearing loss) thought it was his neighbor playing a joke on him and hung up the phone. Big Papi thought it was very funny, and called back! As you will read in the article, they had a great day.
Karen Peluso, Executive DirectorNeurofibromatosis, Inc., Northeast*9 Bedford StreetBurlington, MA 01803781-272-9936
fax 781-272-9937cell 617-529-9562http://www.nfincne.org/* A Member of the National NF Coalition
1 comment:
Hi,
I'm Faby LeColst (Stephan's mom) and I just wanted to let you know that you can still watch the ESPN piece about my son and David Ortiz online. Log into www.espn.com and under search type: my wish david ortiz...click under their name and you'll be able to watch it. I really liked the way they talked and explained NF 2.
Any questions, fabylecolst@comcast.net
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