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What is NF2?
NF2 Studies and Clinical Trials Open
- Avastin trials at John Hopkins, NIH, and MGH
- Lapatibnib trial for Vestibular Schwannomas
- Avastin Press release on Science Daily
- House Ear Institute - Avastin report
- what to know about Avastin
- Info on Avastin
- About PTC299
- PTC299 Trial
- Propolis BIO 30 supplement
- Clinical Trial Database Search
- NIH - National Institute of Health Natural History of NF2
NF2 Fundraising Events
Serenity
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Playing on the Beach in Pacific City, Oregon
Photo Albums
Redmond Weather
Tide Chart for divers and ocean enthusiasts
Definitions of Terms Associated with NF2
Treatment Options for NF2
Thank you to Businesses that support NF2
- Breeder Cheryl Young of Ben-Cher's Poodles
- Bubbles Below, The Scuba Professionals
- Gold's Gym Redmond, Issaquah, and Bothell
- HSA Scuba Instructor and photographer Valerie Lyttle of Jellyfish Productions
- Intuitive Solutions Group, LLC
- PADI dive instructor and physical therapist Mary Beth Ackerman
- Real Estate Investment Firm
- Redmond Park Square Dental
- Stone Sculptor Craig Breitbach
NF2 Resources
NF in the News
- 22 year old woman undergoes surgery for a brainstem tumor
- A Cut Above
- Choosing Life over Hearing
- Endless Obstacles
- girl with NF2 to walk the Disney Marathon
- Hiking Against the Odds
- MTV True Life Episode "I have NF"
- New hope for genetic disorder NF2 - Science Daily
- NF Network News
- NF survivor climbs Kilimanjaro
- Persevering Through Hearing Loss
- Preparing for Deafness
- Watch video documentary about NF2 patient Denise Terrill
- Young boy of Olympic Medalist recieves Auditory Brainstem Implant (ABI)
Subscribe To the nf2 Odyssey
Posts
Comments
Fundraising Guide
Run4NF
Political Advocacy for NF Research
- Fight to caption online videos
- NF Cure Project History
- message from NF Project Cure researcher Bill Knowles
- Sample letter to send your state representative
- Contacting your state's congressman and senator
- Executive Director Naomi Strong's Testimony
- Testimony by NF Inc. presented before the House and Senate
Blogs and Websites of people with NF2
- 40 and On
- 7 year old Leah Manth
- Amber's Hope4Life
- Anomolous Adventures
- Ask Bernadette - support for parents and caregivers of young children
- Author Yvonne Foong in Malaysia
- Daisy Dreams Designs - graphic designer Sarah Gordon
- Fit By 40
- Help Holly Hear
- Life In General
- Life Inspires Me
- Megz Dreamland
- My Silenced Marathon.....My Life
- Res Jr.....Can't Hear But Can Run
- Seattle Web Designer Rhianon England
- So Be It
- The Fabulous Running Mommy
- Things Fall Apart
- Tweety Bird Flies
Places where I train to be a survivor
Real Time Captioning
Bloggers with Hearing Loss
About Me
- Rebecca
- Gold's Gym Big Climb Team Captain, Hodgkin's Lymphoma Survivor of 17+ years, Brain and Spinal Tumor Survivor of NF2, Nonprofit Endurance Athlete, and Cofounder of "Help Stop NF2"
Shop to Support NF!
Buy NF2 Products here & 15% is donated to NF2 Research
NF2 Products - stamps, stickers, shirts, mugs, etc.
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