Welcome to my journey with Neurofibromatosis type 2, known as NF2, a genetic mutation which causes numerous tumors to grow within my brain and spine. Since 2004, I have undergone radiosurgery and 3 brain surgeries for 7 brain tumors. Life with NF2 is definitely a test of faith and a challenge to keep positive. Join me on my harrowing adventure to keep active and live life to the fullest!
Monday, March 14, 2005
Evergreen Mountain Lookout Tower hike fall 2004
Me again. I have no makeup and I am going ol' naturale here. Notice how I have a few bald spots on my head. For anyone who has radiosurgery to the brain losing a little hair in some places is normal. I had 3 round bald spots the size of a quarter. The hair has grown back now and is about 2 inches long.
A robotic arm delivers beams of radiation to various angles around the brain. So I figure where I lost some hair must be where the beams were most concentrated or points of entry that were used often. It is no big deal really and is a heck of a lot better than having your head shaved for surgery or losing a whole head of hair through chemotherapy!
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Becky, you are amazing! -- Curly and Darby
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