Tuesday, April 14, 2009

Pay it Forward

Okay, not sure if I am doing this right but here are the instructions I was given from Olivia, the fabulous running mommy with NF2. Here is her post:

Monday, March 16, 2009
Pay it Forward... again...

Ok so apparently I suck at doing a giveaway contest! I should have posted it as it's own post instead of hidden at the end of a long post. SO...

The first 3 people to leave a comment on this post will receive a gift (possibly handmade) from me during this year. When and what will be a surprise. There's a small catch though...post this same thing on your own blog and then come back and leave a comment telling me you're in, along with a link!

Remember, only the first 3 comments receive the gift!
Thanks Pris for posting this, no tag backs!

So I guess whoever the 3 people who comment, I have to make you something! LOL Hmmn...what will it be and who will it be?????

Here is the original post from Olivia that I commented on:
I Can See Clearly Now

My comment:

"I am still struggling with double vision which is intermittent. It is so frustrating and I have not gotten a good answer for it yet. It has been happening since my surgery in sept 2007. I basically have it everyday but not all day. It is a guarantee when I run. It happens within 10-15 minutes. I see 2 people 20 feet in front of me when there is actually only one. Sometimes it happens when I drive and to see normally I have to tilt my head back with my nose in the air and look at the road in front of me that way. Doesn't that just suck?

When I had my appointment in September and was not given a good answer why it was happening and that it was here to stay I cried. It was really stressing me out. I miss being able to see normal and just look out at the horizon without needing to cover an eye.

A couple years ago, I had an MRI done which included the optical orbits. It showed no tumors on my optic nerves. At that time, I was having papilledema (swelling of the optic nerves) from the large VS tumor which compressed my brainstem after cyberknife.

After surgery in 2007, the papilledema was relieved but then I started having this dang double vision problem. It is not a consistent constant and that is why prism glasses will not work. They can't get a proper prescription and an improper one can ruin your vision and make things worse.

This is one of the side effects of NF2 that is a real bite in the ass! I have nystagmus and oscillopsia too.

I miss having perfect normal vision. :o("

April 14, 2009 6:19 PM

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